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Ulcerative Colitis Personal Stories
Please send us you personal story, it help others coping with the same issues.
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Sherry's Story
I am a 41 year old female. I was diagnosed with UC two weeks ago. I had been experiencing bloody diahrrea for approximately two years before my condition became impossible to live with. I own a gym and provide personal training 10 hours a day five days a week. My urgent bathroom visits were inconvenient but I had been able to "live" with it until four weeks ago. The bleeding became heavier, the diahrrea was never ending and the only way I could remain on duty at work was to fast. Then even fasting didn't work because I had to drink water and that triggered diahrrea also!
I do not like going to the doctor. I have a deep seeded fear of interracting with doctors. When I began exibiting symptoms of shock while at work, some of my clients insisted that I go immediately to the hospital. I was given a medication to stop the diahrrea and scheduled to the colonoscopy. After the colonoscopy the doctor told me I had UC and handed my husband several pages of instructions concerning diet and a prescription for Asacol, some medicated enemas along with instructions to schedule a follow up office visit in two weeks.
I was under the impression that after I completed the two weeks of medication he had prescribed and visited with him that would be it. He told me yesterday that I have an incurable disease! As an exerciser and no medical problems ever, I find if hard to believe that this is happening to me. I am not crazy about being told that I will have to take the Asacol medication for the rest of my life. I have no insurance and being self-employed paying $200 a month for this medication is hard to accept.
My husband is handling this better than I am. There must be some other alternative to life without parole on Asacol. If I had high blood pressure, there would be options to explore to get off the medication. If I had high cholesterol, there would be ways to alter my life to make the medication unnessissary. I just have a hard time believing there are no options available outside of medication.
Thank you to all of you who have shared you stories. For a newly diagnosed UC, it has been very informative to read the stories.
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