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Ulcerative Colitis Personal Stories

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Lisa's Story



I was diagnosed with UC 32 years ago at age 15. I have been ashamed and embarrsed about it all that time. I have not had a solid bowel movement in 32 years. Mostly I prefer to be home where I can use an upstairs bathroom as needed.

I've been taking Pentasa (4 pills with each meal) and Folic Acid (twice a day) for many many years. I've increased the frequency of having a colonoscopy over the years until it's been annually for the last 10 years. This last one (last month) they took 60 samples for biopsy and sent them to a team of Gastroenterologists for review. Some say there is log grade dysplasia, others didn't see that. Next I'll have to make some serious decisions on surgery or not. After 32 years you get used to things being as is. Now it just got scary.





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