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Ulcerative Colitis Personal Stories

Please send us you personal story, it help others coping with the same issues. Email us at: .

Vicky's Story



I have recently been diagnosed with UC & have had a pretty rough time trying to find a medication that my body can tolerate. The first three I have been unable to live with the side effects eg hair loss, fatigue, rashes, bleeding, to name a few. When told to take the 4th type of medication I was told that some of the side effects are white blood cell reduction, can affect your bone marrow, hair loss, rashes, more prone to skin cancer, pancreatitis, etc etc etc! I declined medication. I am taking fish oil, probiotics, multi vitamins, am visiting a dietician who has great knowledge of UC, visiting a councillor, still see my specialist ( to monitor the disease - I think he is waiting for me to change my mind). Maybe later on down the track I will need to change my mind but I am not ready for that yet.

I have had this disease for at least 5 years & have lived with the flare ups occassionally. A gluten free diet for the last 4 years has helped enormously. My father has coelic disease so I thought this was my problem too. The benefits have helped me lead a happy, mostly normal life. I am learning to meditate & take time out for me on a regular basis as the common thread with peoples stories has been that stress causes flare ups. I don't know whether I am making the right choise or not but I will let you know later on.

I hope someone gets a little relief from the worry of this disease by my sharing my story with you. I know I did by reading everyone elses stories.





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